Wednesday, January 11, 2006

Jodi's Jovial Jargin

We just got back from our IEP. It went really well. There were only 9 of us this time which was so much nicer then the last time when there were 17 people then just little old me. Mark came for part of todays too. That was nice. I could like IEP’s if they all went as well as today. I asked about the issue of sticking the tube in so he could throw up if he needed through the tube. They said that yes the nurse had done the training and all was well. So I was VERY excited about that.

They looked at realistic goals for him. (Sometimes it is not as much as I would like because I sometimes expect too much from all of us) and they have to bring me back down to life sometimes. LOL So I am talking to the aid after and she said something about the button and I said…. So when you stick the tube in to have him throw up then… She said We don’t stick a tube in we just open the cap. OK for those of you that don’t know there is a little plastic cap that goes on the button. It is just a flap that you push into the button. I said that is not how he throws up. You have to put a tube in. By that time the nurse had come back into have another 1 hour meeting with me with just the medical stuff. So we went at it again. I think she and I clash just a bit. But I think I learned a little bit more why later. One I get to defensive too fast! I said let me go get a unused button and we can go over just how simple this is.

I came back. I breathed out to the car in slowly out slowly. LOL So I calmed myself down. I think part of what made me so mad was we had starting fighting for this from the very beginning of the year and we are still dealing with this. Also that Jake’s doctor had called her and then called me after and said she is fine with the whole process. So it took me a bit off guard.

So then I think I learned the last part of what was going on. I dropped the button and tube off and then I had to go get Brendon from class cause school was out and wanted him to know where I was at. When I came back she said how much air do I push in the balloon. Ok Christine get back up off the floor. LOL You do not put air in the balloon. You put water. So she and I had a little teaching session and I showed her so now she is like oh that would be simple to do.

It made me think about stuff. She and I were really butting heads… bad. The beginning of the year we had a very bad problem with this. Me being the biggest problem I think LOL I think that we forget that we had to be taught everything with our kids. This nurse obviously was not up to date on some medical stuff. She didn’t know what the vest was for CF either. But you know they are all not going to know things. We need to be more patient when dealing with the staff that is working with our kids. If they don’t want to do something for us it might just be we need to teach them. They may just not know how to do things so they are scared a bit. So by the time I left I think things were fine and I learned a lot. I am so grateful for all the people that are trying to work with Jake. He LOVES school. He is the bestest aid ever. I am so happy with her and it looks like she will work part time with him next year. I am so excited about that.

Any way that is my day of IEP.

Sunday, December 11, 2005

I am so blessed...

I have spent the day at church. It has been a couple of weeks since I have been there. Jake was sick, I was sick, I went to a different ward where Mark was talking in their church...

As I was sitting in Sacrament meeting I partook of the sacrament and felt the Spirit so strong. I kept thinking of all my blessings. I will just name a few here.

I really have the best husband in the world. He is so wonderful in doing EVERYTHING he can to support me and the kids. It is more then just getting up and going to work too. Although we appreciate that very much. He gets up with the boys and gets them ready for bed. (He does it even though he doesn't want to have to do it) He plays Yug-e-oh with Brendon. Brendon just switched from Pokemon to Yug-e-oh. Mark researched them and learned out to play so that he could have a special bond with Brendon. He does whatever the kids enjoy. What a great thing this is. Can you imagine doing whatever hobby your child does. I need to do more with the kids... LOL

He does so many things for me. In addition to helping with kids n s omany ways he makes sure my needs are met. He listens to me when I am frustrated, he makes dinner at times. Yesterday he made lunch then came in and got me a diet coke and ice and poured it all for me. He always does the little things that are so sweet.

He is always trying to ng for our family and others and is so giving. He loves to help take care of others. Or at least he likes the feeling when it is all done.

This part took longer then I thought so I will write more about my blessings because I actually could go on forever about my loving husband. I sure am glad I get to spend FOREVER with him. I love you Mark!

Tuesday, December 06, 2005

Well thanks for all the warm welcomes to bloggers world. Today has been a pretty crazy day We have been trying to get medical equipment for Jake. After a full year I was able to get just over half of it. Now we will keep fighting for the rest. The big thing though we finally got an upgrade for his wheelchair.

He has been sitting in a wheelchair that was way too small for him. It has done some damage to his neck because it pushed him out ot the chair and he was slouched forward. We got a walker and a stander for him too. I can't wait till we get the new wheels we ordered for the wheelchair as he will be able to push his own chair. He has practiced on his friend Adams chair and does pretty well with it. We are supposed to get that in a couple of weeks.

Monday, December 05, 2005

Ok my arm has been twisted....

So I have had a little pressure from people that I need to start a blog, I kept thinking one day... but my friend Lisa kept encouraging me to do so. My dh Mark did as well. Lisa actually set it all up for me. LOL So here I am. I spent yesterday reading many blogs of people from the triple dueces in Iraq. I appreciate their blogs and the things they do for our Country. I love staying home with my kiids on a daily basis. It is difficult at times to do it but I am so grateful for the oppurtunity to do so. I have 2 super great kids whom I am very proud of. They are awesome and they teach me new things every day. I have a 8 year old that was just baptized into the Church of Jesus Christ of Latter Day Saints. I am so proud of that boy. He is strong in all the things he does. He knows what he believes and he makes sure he lets everyone know what that is.

His brother to is a strong boy. He has Cerebal Palsy and also has Cystic Fibrosis. He has the excuse of life is hard but you would never know it with the way he responds to life. He smiles all the time (well unless he wants a new toy or a new game for nintendo LOL) but he reminds me all the time to take your struggles and do with it what you will but enjoy life. Celebrate. I am so proud of both of them.

My dh Mark is the best. He is so supportive and makes me go scrapbooking to get out of the house. He is always trying to make my life easier and he is the best. So this is just my brief introduction in getting my life out there.

Basically my life is centered around my family and my religion and my friends. I feel blessed to be among all of them....